Monthly Archives

October 2024

Grieving with Grace: A Bereaved Mother’s Story by Amanda Eby

By Birth, Grief, Infant Loss, Parenting, The Power of Story

This is a featured article from our 2nd edition of the LIFTS Magazine.  

Editor’s Note: This story is about infant loss. HMHB feels it is important to share stories about grief and loss because they are an important part of Montanans’ pregnancy and parenting experiences. That said, we also encourage you to take care of yourself. If this is a difficult topic for you, make sure you have the support you need before you read this article, or skip it if that’s the right thing for you to do.

Grieving with Grace: A Bereaved Mother’s Story

By Amanda Eby

I sensed hesitancy from the sonographer as she clicked incessantly on the keyboard. After hoping, waiting, and praying, I was more prepared for thispregnancy than I was for my first child, Olivia. But I was shocked when, as my bladder was near bursting, the sonographer exclaimed while she typed in all caps – “TWINS!”

My mother died three months before I became pregnant. I yearned to dream of her, to feel close to her again. When I finally did, it branded the creases of my brain. She came to my side, and in an uncharacteristically calm voice, she told me that one of my babies wasn’t going to make it. I didn’t share the dream with anyone, but I buried it in my shoulder like a quiet cross to bear. I couldn’t let go of it because it was a precious visitation of my mother I missed dearly, yet I fiercely blocked it as a possibility. Her peaceful presence then would resurface later to comfort me when my nightmare came true.

“We have Baby A who is doing well, Baby B is pretty sick, but all the nurses and doctors are trying to help her now.” I awoke to these words from my husband, struggling to comprehend as I tried desperately to awake from anesthesia. I was in disbelief. I was almost 37 weeks. My co- worker had just joked with me that they were just getting fat now and could come out anytime. My specialist had told me I could “write the book on having twins.” We would say goodbye forever to our Baby B, Jacqueline, just eight hours later. For eight powerful hours, we held her.

 

The first year was numb as we maintained survival mode. One lonely twin didn’t want to eat, an older sister didn’t know how to grieve, and two parents mourned in their corners yet still occasionally found each other. I searched for answers and signs of my daughter gone from earth. I had sudden moments of sorrow and angst, remembering not all my children are with me. We celebrated milestones, watched a personality emerge, and witnessed the discoveries of young childhood – all while quietly acknowledging the persistent, sad void that coupled each of those milestones. I found solace when I focused on my mother holding my baby, rocking her, just as if they were with me.

Caroline, our Baby A, has always talked about her twin. She asked why her twin Jacqueline got sick. I tried explaining twin-to-twin transfusion to a 4-year-old. She listened and asked if that was why she died and why everything had to go to her instead of Jacqueline. Then she curled into my arms and told me she was sad. Repeatedly through toddlerhood, she asked: “Where is Jacqueline? Did she die? Why did she die? How did she die?” While I strived for patience, I became robotic to maintain composure. I had moments of weakness where some days I just couldn’t act out the Groundhog Day rendition of my daughter’s death. Sometimes I was short with her. I was terse and shamefully irritated by her questions that seemed to lack concern for the gravity of the situation and my emotions.

Now, rather than verifying her reality, she recognizes and acknowledges it – when my tender heart least expects it. While planning her fifth birthday, Caroline said, “Wait, how are we celebrating Jacqueline’s birthday?!” I reminded her of the pink lantern we sent to the sky, and she smiled and commented matter-of-factly that it’s important because it’s her birthday too. One day, she went to play with schoolmates – twin girls her age. She told me about their lunch and the backyard surrounded by lilacs. It wasn’t until she was about to fall asleep that she elaborated. “Their room is so cool, Mom,” she said. “I wish I had that room to share with Jacqueline.”

I shared my story publicly a few times before Pregnancy and Infant Loss Awareness Day on October 15th and then I breathed a small sigh of relief. I was feeling, as Brené Brown puts it, a “vulnerability hangover.” I had been holding hard space for my grief, carrying a little suitcase in my gut, pulling on my heart with a comforting weight. And then I was ready to set it down. It was a ticket to validation.

I do not believe things happen for a reason or search for reasons why they happen. I resist the urge to step into a dark forest of twisted trees of blame, shadows of “should’ve,” screams of “but only,” and cries of “what if.” Grief overwhelms enough when my body aches as it cradles hollowness, it shudders with an insatiable hunger. No amount of blame, not an ounce of retraced steps, no spat of anger at broken systems or resentment of human error will fill that space that can’t hold a child. It only sharpens the ache to anger.

I have learned about “grieving with grace.” Our friends and family, or strangers in the supermarket, will inevitably make comments that sting. I try to extend patience, to recognize possible coping mechanisms of stoicism or nonchalance. I hope to teach them, wait for them.

Jacqueline shows up in our lives in many different ways. Amidst a stint of relentless bickering between Olivia and Caroline, we approached the store aisle containing a plethora of various gingerbread house kits. I dreaded yet another argument about which type to purchase as I listed them — Barbie, Mickey Mouse, and so on. Much to my surprise, they immediately agreed on a birdhouse with a red cardinal perched in front. A red cardinal can be a sign of hope from a departed loved one, a sign of their peace. It was as if they knew.

I am happy for you and your pregnancy and children, and I’m sorry if the pain of seeing what I dreamt for overshadows that happiness. We are all mothers, and I always want the absolute best for every single one of you. That said, please understand that I may not want to go to your baby shower, or even shop for a gift. Don’t ask me how many children I have; instead ask me about my family. When you talk with me, be prepared for discomfort. Please don’t encourage silent grieving, but listen and support me. Bereaved mothers are part of the motherhood story that connects us all.

 

 

Pregnancy and Infant Loss Resources:

–  Ramsey Keller Memorial pays for infant funerals in the state of Montana. https://www.kisses2heaven.com/

–  Now I Lay Me Down to Sleep provides the gift of remembrance portraits to parents experiencing the death of a baby. https://www.nowilaymedowntosleep.org/

–  Still Standing Magazine is for all who are grieving child loss & infertility. https://stillstandingmag.com/

–  Various “angel gown” organizations that you can find online convert donated wedding dresses into infant burial gowns.

Building Confidence for New Parents Through Home Visiting

By advocacy, Caregiving, Home Visiting

This is a featured article from our 4nd edition of the LIFTS Magazine.  

As told by: Shelby Gustin and Chaz Gustin

 

SHELBY:

I learned about home visiting after my son was born. I was at my first WIC appointment, and the home visiting program was based in the same public health office. I was kind of anxious about being a new mom, and was a stay-at-home mom at the time, so I didn’t really have a lot of people to talk to. I was looking for guidance and advice, but also needed some social interaction myself. The first visit was nerve wracking – I’m a new mom, I have a three-week old baby, and I don’t know what I’m doing. Towards the end of the visit I felt a lot more relaxed, a lot more comfortable, and more open to the program.

 

The frequency of visits depended on how comfortable I felt with my son, and where he was at, developmentally – they base it on your child’s needs, as well as your own. At first, I was really worried that I wasn’t interactive enough, that I wasn’t helping my son reach his milestones, especially at a younger age. The home visitor came and was very reassuring. She told me: “He’s ahead of where he should be, and he’s doing great, and you’re doing great.”

 

This program is not just for the babies, they have a lot of resources for the mothers and fathers. If you need to see a therapist, they can bring you a list of providers; if you just need to vent, they can sit there and listen. They’re very supportive. There was a visit where the house was a mess, and I was hurrying up and cleaning, and we were able to do the home visit while she helped me pick up.

 

I think that all new moms would benefit from home visiting. I’m pregnant with my second now, and I still want to keep doing the program. I definitely think it’s for everyone if they’re interested in it. It’s awesome. One of the best decisions that I made as a new mom was getting into this program.

 

CHAZ:

We had Greyson when I was a student in high school. There were times when I didn’t want to go to school, but with the help of Shelby, and my aunt, I was able to fully go to my classes and stay knowledgeable and do my homework. Greyson was there at my graduation, as a little man, just a couple months old. It was so awesome. Eventually, I want to go to college.

 

We had a lady from WIC who talked to us about the Parents as Teachers Home Visiting Program, and it felt like a great opportunity. I was grateful to have somebody that cared. We had this nice lady come in and teach us all about our child and his development. There were times where I was at work, and Shelby would let me know how the home visit time was spent. But when I’m able to be there, I try to be present, and get all the information I can, because it really is beneficial to our son’s growth.

 

I have a friend who just had a baby, and I was talking to him about home visiting. His girlfriend was really interested, because he’s busy with work. Next time I see him, I’m going to bring it up and just let him know how important it is for kids and for the parents, as well.

 

My advice to new dads is to be patient, and don’t be too hard on yourself. You’re still new to being a parent. You’ve just got to try your best and keep doing things day by day. It all comes together in the end if you work for it.

 

 

Frequently Asked Questions About Home Visiting

 

What is a home visiting program and how can it benefit my family?

Home visiting is a voluntary, proven support and coaching service that strengthens families through pregnancy and early childhood. Trained home visitors, such as nurses and early childhood specialists, work with expecting parents and caregivers of young children, to build parenting skills and connect families with needed services to support optimal physical, social, and emotional child development.

 

Who can participate in a home visiting program?

Eligibility for home visiting programs varies by program, but some are available regardless of income or background. Currently, not all areas in Montana have the same access to home visiting programs, but statewide work is being done to change this!

 

Can both parents participate in the visits?

Absolutely! Home visiting programs encourage the involvement of both parents. Mom, dad, grandparents, siblings and any caregiver who is important in the child’s life are usually welcome to participate!

 

How do I sign up for a home visiting program?

The best way to sign up for home visiting is to reach out to a local program near you.  You can use the LIFTS Online Resource Guide (hmhb-lifts.org) to find home visiting sites across Montana by typing in “home visiting” in the Search feature. If you have trouble locating one, please call the LIFTS Warmline (406)430-9100 for assistance.

 

What happens during a home visit?

During a home visit, the visitor will provide personalized support based on your family’s needs to increase your competence and confidence in parenting. This may include discussing your child’s development, answering parenting questions, providing lactation support, offering health and safety tips, and connecting you with community resources.

 

Is there a cost to participate in a home visiting program?

Most home visiting programs are offered at no cost to families. They are often funded by state or federal programs, non-profits, or community organizations.

 

What if I’m not able to have someone visit my home or I don’t have a home?

Home visiting programs are designed to be supportive and non-intrusive. If you have concerns, you can discuss them with the program coordinator to find a solution that works for you, such as virtual visits or meetings in community spaces like a library or coffee shop.

 

Will the program help with special needs or high-risk situations?

Yes. Home visitors are trained to support families in various situations, including those with special needs or who are experiencing high-risk circumstances. They can connect you with additional support and services as needed, such as medical case management by nurses for medically fragile children.

Visit hmhb-lifts.org for local resources using the search terms “Family Support & Education”, “Food and Nutrition Supports”, and “Public Benefits Enrollment”.  You can also visit hmhb-mt.org/homevisiting to learn more.

Photo Credit: Max Stiles (family portrait), Shelby Gustin (graduation pic)