Spotlight on the 2024 Montana Status of Women Report

By advocacy, Community, Community Support

Today on the HMHB blog, we are excited to amplify the newly released 2024 report ‘The Status of Women in Montana: Advancing Policy for Economic Equity.’  This report was meticulously prepared by the team at the Montana Budget and Policy Center with an introduction from the Women’s Foundation of Montana. It provides a comprehensive analysis of the current state of women in Montana, highlighting policy pathways to improve economic opportunities, health and well-being, political participation, and improving lives for families and women in Montana.

The report is a valuable resource for understanding the challenges and progress in achieving gender equity in our state. It offers critical insights and data to inform policy decisions and advocacy efforts aimed at enhancing the lives of women in Montana. The report presents a variety of solutions and pathways to equity, including:

  • Improving access to affordable childcare
  • Preserving reproductive rights and autonomy
  • Improving access to healthcare, including Medicaid expansion
  • Providing paid family leave
  • Amplifying efforts to expand work related to ending the Missing and Murdered Indigenous People (MMIP) epidemic

We encourage you to read the full report to gain a deeper understanding of these important issues. You can access the report here.

Lifting Up New Moms, by Emily Clewis

By Caregiving, Community, Feeding Baby, Maternal Mental Health, Parenting, pregnancy, Self-care, Self-compassion

This is a featured article from our 1st edition (2021) of the LIFTS Magazine.  

Lifting Up New Moms

By Emily Clewis

A new life joining the world is a very exciting time. Friends and family members may be eager to gather around to take part in celebrating the new bundle of joy! There are so many ways to show up for families welcoming a new baby. Before you invite yourself over to hold that new baby, there are some really important things to keep in mind.

While holding a new baby is exciting, it’s the birthing person that truly needs to be held, loved, and supported in this golden, but vulnerable time. If the mother is well supported, she can better care for her new baby. Supporting parents in what they need is just as important as welcoming their baby.

The first couple of weeks are crucial for bonding, and new parents may not want any visitors during this vulnerable period. Always ask parents what precautions they may be taking and if they are up for visitors before coming to visit. New babies have no sense of night or day, so parents may be sleeping with their little ones at noon after being up all night. Be flexible with your plans for visiting and understand they may change.

If you do visit, wash your hands well and keep your face away from the baby’s, as babies are vulnerable to common illnesses. Always ask the parents if it’s okay to hold the baby. If they say yes, encourage them to take a shower or quick nap while you’re there. This is a great opportunity for them to take care of themselves!

Offer to bring healthy snacks or a ready-to-heat nutritious meal. Ask mom if she has eaten, and maybe make her a meal (and then do the dishes!). New moms, especially those breastfeeding, are always thirsty and require more calories. If she feeds the baby while you’re there, help her put her feet up and offer to get her water or a snack.

Look around for things that need to be done: laundry, dishes, taking out the trash, etc. If there are older children in the house, offer to watch a movie with them or take them on a walk. Ask new parents what they need; they will likely tell you!

 

Finally, don’t overstay. Parents during this time are heavily exhausted, and even well-meaning company can make parents feel the need to entertain. An hour or so is plenty in those first few weeks.

The early weeks of having a newborn is a beautiful time to support moms and babies. With healthy support, parents are less likely to suffer from perinatal depression and their babies have better health outcomes. Feel empowered to show up for new parents in a way that is helpful, supportive, loving, and graceful.

 

Boundaries to Support You

During postpartum, it is easy to be led by excitement and pride. You want desperately to share this new human with the world and to shout, “Look what I did!” from the rooftops. As women, we know that in the first few weeks, we are supposed to rest and allow our bodies to heal and recover. But our friends and family start calling, and we tell ourselves that we will rest later. Suddenly, visitors and responsibilities snowball, and somewhere under it all, there we are, crushed and tired as hell.

Here are some simple phrases to help draw boundaries around yourself in postpartum.

“We are not ready for visitors at this time.”

“I’m feeling really tired today. Let’s plan for another time when I’m feeling up to company.”

“My body doesn’t feel up to that. I’ll let you know once I feel recovered.”

“I don’t feel comfortable with that quite yet. I can reach out to you when I feel ready!”

“I know we had plans, but I’m not quite up for it after all. Let’s try again in a few days. In the meantime, here are some sweet pictures!”

“What I really need help with at this time is…”

“No.”

Mama, feel empowered to listen to and advocate for your own needs during this time. Speak them fiercely and unapologetically, even if your voice shakes. Your own mental and physical health is so important, and you have permission to draw a circle of protection around yourself.

 

 

To find resources and support for postpartum, parenting and more, visit our LIFTS Online Resource Guide at https://hmhb-lifts.org/. 

The Becoming, by April Lemieux

By Parenting, pregnancy, Self-compassion

This is a featured poem from our 3rd edition of the LIFTS Magazine.  

 

The Becoming, by April Lemieux

My lips formed around

your name, little one,

long before I ever

held you close.

My body a living shelter

around the ember

of your essence.

And now here you are

living and breathing and

Oh….who knew it could

all feel so big?

This mothering.

This sudden vastness

of love that stretches wide and deep

like the prairie sky.

Oh tiny being,

my child,

my heart.

You have undone me

and made me whole

in the space of one breath.

What magic.

What wonder.

 

To find resources and support for postpartum, parenting and more, visit our LIFTS Online Resource Guide at https://hmhb-lifts.org/

Empowering Families with Essentials: HMHB’s Safe Sleep and Safe Car Seat Initiatives

By Caregiving, Community, Community Support, Parenting, Safety

Ensuring the safety and well-being of our little ones is paramount. However, for some families, accessing essential items like safe sleep spaces and car seats can be a challenge. That’s where Health Mothers Healthy Babies (HMHB) steps in with the Essentials program, providing pack-and-plays and car seats to families in need across Montana through our Safe Sleep for Baby and Safe Seat for Baby programs.

Foundation of Essentials

Image of a happy family with a baby in a car seat, showcasing the importance of safe travel for infants.From its inception, Essentials has been an integral part of HMHB’s mission to support mothers and babies aged zero to three. Recognizing the critical importance of safe sleep and secure travel for infants and toddlers, the program was designed to bridge the gap for families facing financial or logistical barriers.

Impact

A glance at the numbers reveals the program’s growth and impact. In 2024, less than half-way through the year, we are already on pace to surpass our crib and car seat distribution from 2023 and have a broad reach across Montana counties and Reservations. Since its inception, the program has distributed thousands of pack-and-plays and car seats to Montana families.

Year Counties Served Reservations Served Car Seats

 

Cribs
2024 (through May 1) 22 4 141 120
2023 28 6 244 209
Success Stories

The heart of Essentials lies in the stories of families it has helped. Through testimonials like April’s, who found solace in a pack-n-play for her newborn in a small trailer, or Martha’s, a homeless mother provided with a pack-and-play, this program makes tangible differences in people’s lives. From fleeing domestic violence to unexpected births, the Essentials offerings can be accessed during critical moments, offering safety and support.

Building Trust Through Partnerships

Image of a happy baby, safely in a pack n play.To ensure car seats and pack and plays are safely set up, providers (such as doctors, nurses, Health Departments, home visitors, etc.) must order Essentials items for the families they serve.  Thus, Essentials not only provides tangible products to families, but also fosters trust and relationships with direct service providers. By equipping partners with resources, HMHB empowers them to support parents comprehensively, from access to guidance on safe sleep practices, laying the foundation for future engagements.

Continuing the Mission

As HMHB continues to expand its reach and impact through Essentials, the commitment to ensuring every Montana family has access to safe sleep spaces and car seats remains unwavering. Through collaboration with partner organizations and the dedication of its team, Essentials continues to be a beacon of hope for families in need.  If you would like to help further the reach of this important program, please consider making a donation.

Donate Now to Provide Essentials to Montana Babies

Rupture & Repair as a New Parent, by Cait McWilliams

By Parenting, pregnancy, Self-compassion

This is a featured article from our 3rd edition of the LIFTS Magazine.  

Rupture & Repair as a New Parent, by Cait McWilliams

Becoming “mama” was not a part of my plan. I didn’t have a spare room that I was planning to turn into a warm and welcoming nursery. My partner was barely a partner and more of a very attractive man that I had met in a bar. My kitchen had no food but plenty of booze. I wasn’t exactly taking my vitamins on a regular basis.

I had just moved halfway across the country and all the way out of a marriage. I was untethered and exploring my newfound freedom when, in the midst of my move, I met a man who lit me up and captured my curiosity. We threw caution to the wind and avoided conversations about a future together. After our initial connection, we went our separate ways and then, a few weeks later, I found out I was pregnant–with him living in Seattle and me in Denver.

A rigid schedule and stability had felt like death to me in my 20s but now I had to get myself out of the way so I could create a life that supported this cub. I told my gypsy self she was no longer invited to the party and tried to lock her away out of intense fear that, haunted by my own trauma, I would destroy this family. In my attempt to “do it right,” I shut down parts of me that still mattered and was not able to allow myself to be human.

I was exhausted, depleted, fearful and in a new town without deep-set connections–including with my partner. From a nervous system viewpoint, I was in a state of constant survival. The feeling of being in a state of survival is one of intense stress and heavy burden on our physical beings – constricted muscles, tight jaw, chest breathing, constant startle, difficulty tracking conversations, insomnia, poor digestion, upset stomachs, inflammation.

This intense stress impacted my little as he was growing in my womb and for those first few months of his life, when attunement is key, but almost impossible when your system is filled with fear. I used the tools my parents had used, enmeshment and manipulation, to navigate my overwhelmed system. I fell back into familiar patterns of override and numbness. I rarely felt settled enough to rest and just play, and my attunement was primarily based in vigilance and not as much on connection.

At around sixish months, certain variables began to shift which allowed my system to start to release the grip of survival. My life, which had been ruptured by my unplanned pregnancy, began to repair and take on a new shape full of a deeper love and security than my younger self had ever known.

I began to build secure attachments (a foreign language to me before becoming pregnant). My partner and I found our rhythm and decided to make a life together. I met dear friends with babies the same age that I would gather with regularly for hikes, hangs, or just to fold laundry and compare notes. They brought playfulness and curiosity back into my life which are the opposite of fear and constriction. We learned from each other and gave ourselves permission to be imperfect.

My body became familiar again. That first year of mamahood, my body was unlike it had ever been in my life – large breasts and a split apart core. I didn’t know how to dress, and things that had physically come naturally to me in the past, were now impossible to access. As my core began to knit back together, I could feel my sense of self-worth building in potency instead of leaking out of me.

As I experienced the rupture that can happen during and after having a baby, I began to also witness the repair in my own life, which helped me begin to see the seeds that were planted in this cub during more fragile times. And, as I began to repair my own system and come out of survival, I began to provide him with repair as well.

I was coming out of my fear body and, as my new life came into focus and I stopped being so damn scared, I began to find joy. It took time. It took making mistakes. It took being a mess and asking for help. It took moving my body, finding people who loved me even when my breasts were leaking and my BO smelled like french onion soup (a real thing). It took me doing my own work studying Somatic Experiencing while also doing personal work with a therapist. It took me forgiving myself while also holding myself accountable. It took me having the courage to admit my failings to my cub.

And, as we grew our family (having two more cubs and weathering other storms), the wisdom I gained by walking through the intensity of what felt like an explosion of self, has acted as a guiding light many, many times over the last decade.

So, dear birthing people, as you hold that new little, know that you are not alone in your fears.  This is a time of great rupture–mind, body, spirit, relationships. In many ways, what you thought you knew will be turned on its head. But, repair is possible even if it’s hard to imagine what that looks like in those early moments.

Reach out for help.

Connect with others.

Move your body.

Find permission.

You are not alone.

Repair is possible!

To find local supportive parenting resources visit: https://hmhb-lifts.org/ and use the search terms “somatic”, “counselors”, “mental health providers”, “support groups” or “parenting classes”.

To learn more about Cait’s offerings visit her site: https://www.thebodyiswise.com/.

HMHB in April Issue of Health Affairs

By Community Support, Maternal Mental Health, Native American Initiatives, Native Cultural Connections, Parenting

Behind the Scenes: A Strategy to Support Perinatal Mental Health By Collaborating With Tribal Communities in Montana (A note from our Executive Director, Stephanie Morton)

Hello HMHB Supporters,

I am elated to share that staff at HMHB authored an article that will be featured in Health Affairs, April issue on Perinatal Mental Health and Wellbeing.  You can link directly to the article and full April Issue (both are open access).

Led by Dr. Amy Stiffarm, PhD, MPH, Director of Native American Initiatives at HMHB, HMHB staff including myself, Dawn Gunderson, CLC, Program and Communications Coordinator and former Executive Director, Brie MacLaurin, collaborated with Nicole Redvers, Maridee Shogren, Terri Wright and Andrew Williams, to produce the article titled, “A Strategy to Support Perinatal Mental Health by Collaborating With Tribal Communities in Montana.” The article highlights work completed to include family-supporting resources on Reservations in Montana into the LIFTS Online Resource Guide (hmhb-lifts.org). This project was completed in partnership with HMHB and Dr. Stiffarm while she was a graduate student at the University of North Dakota in the Indigenous Health Program. Funding from the Montana Obstetrics and Maternal Support (MOMS) Program made it possible for the HMHB Team to fittingly engage Tribal communities in the process of mapping local resource relevant to pregnant and parenting families to be listed in the LIFTS Resource Guide.

The HMHB team is so appreciative of the funding, partnership and support that has allowed us to engage in this important work. Many of you have been key partners in this work and for that we are deeply grateful. Additionally, we are so thankful for the community members who shared their time and knowledge to improve the system of care for families in Indian Country in Montana. Please join me in congratulating Dr. Stiffarm and the team on this success. We are so proud to work with you all to continue to improve the health and wellbeing of Montana moms, babies and families.

Sincerely,

Stephanie Morton
Executive Director

 

Find Native Cultural Connections and other support in your community on the LIFTS Online Resource Guide at https://hmhb-lifts.org/.

Learn more about Dr. Amy Stiffarm’s work and our Native American Initiatives Program

 

Week of the Young Child in Montana: Celebrating Our Little Ones

By Early Childhood

From April 8th to April 12th, organizations across the state of Montana are gearing up to celebrate the Week of the Young Child (WOYC), a special time dedicated to honoring and recognizing the early years of childhood. This annual event is a nationwide initiative by the National Association for the Education of Young Children (NAEYC) and is spearheaded at a state level by the Montana Association for the Education of Young Children (MTAEYC).

The Week of the Young Child is a dedicated time to raise awareness about the crucial significance of early childhood education and development. Communities unite during this week to honor children and the devoted professionals who nurture their growth and learning. Throughout Montana, the Week of the Young Child is commemorated with an abundance of events and activities tailored to engage children, families, educators, and community members alike. From interactive workshops and storytelling sessions to outdoor adventures and family picnics, the week offers a diverse range of opportunities for learning, exploration, and enjoyment.  Themed days include Music Monday, Tasty Tuesday, Work Together Wednesday, Artsy Thursday, and Family Friday.

 

Here are examples of fun and exciting activities across Montana:

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You can check out the comprehensive list of WOYC events on the Montana Association for the Education of Young Children (MTAEYC) website here.

If you’re interested in hosting your own WOYC event, you can find more information from the NAEYC website here.

By celebrating the Week of the Young Child, Montana reaffirms its commitment to investing in the well-being and future of its youngest citizens. So let’s come together, celebrate our little ones, and build a brighter future for all!    
A parent and child sit amidst packed boxes, representing the struggles of eviction.

Facing Eviction: The Critical Impact on Children Under 5 in Montana and Across the Nation

By advocacy, Caregiving, Community, Eviction, Housing, Parenting, Perinatal Substance Use Disorders
Today on the HMHB blog, we’re sharing crucial new insights about eviction in Montana, graciously communicated by our colleagues at the Montana Legal Services Association. Michelle Potts, Director of Strategic Focus and Development, has provided us with invaluable information regarding the impact of eviction. Read more about this pressing issue and its implications.

 

From Michelle Potts, Director of Strategic Focus and Development at Montana Legal Services Association:

Howdy! I know you all work so very hard to make our communities a better place, and thought you might find local Montana data to be of help in your work. We recently published two new Montana reports: Beyond Housing Affordability assesses the data of 65 client households who faced eviction in both rural and urban areas of Montana, while A Sample of Personal Narratives allows the clients to tell about the impact in their lived experience.

Unfortunately, our Montana study confirms a new study from the Eviction Lab, which shows that children under age 5 make up the largest group facing eviction nationwide. Hopefully this data will help you make the case for the support you need for your work.

Key takeaways from our Montana report include:

  • 48% of households facing eviction had at least one child
  • Over half of the respondents spent more than 10% of their annual income on the cost of the eviction itself – a huge burden for families already struggling to meet basic expenses.
  • 100% experienced increased expenses before the eviction, including medical emergencies, added childcare expenses, domestic violence/divorce, or added elderly dependents.
  • Respondents reported additional up-stream social breakdowns: 17% had a death in the family; 18% had violence or abuse in the household; 12% had alcohol abuse in the household; 14% had a divorce or separation; and 69% had a mental illness in the household. For households with children, these events are considered Adverse Childhood Experiences, which are linked to chronic health problems and mental illness in adolescence and adulthood. At least 5 of the top 10 leading causes of death are associated with ACEs.
  • 31% of respondents were in unstable and at-risk housing after the eviction process, including 26% of households with children. 18% were homeless as a result of the eviction.

The report includes interviews and direct quotes from Montanans facing eviction, including:

  • When asked what factors led to the eviction, one respondent replied that the “landlord doubled the rent with 10 days’ notice from $1,200 to $2,400.”
  • Survey respondents described the impact of facing an eviction on their families: “One of my children dropped out of school afterwards and did not finish high school” and “I attempted suicide 6 months after I moved.”
  • “It took all the funds I had for the storage units I had to rent and the U-Haul, plus I lost my food stamps because I had no rent but had to pay cash if I stayed anywhere.”
  • “The only reason we had a child was because we thought our rental situation was going to be long-term, and now, the only “home” my child has known is a hotel room.”
Thank you to the team Montana Legal Services Association for allowing us to share this information.  To reiterate what Michelle eloquently stated, “Hopefully this data will help you make the case for the support you need for your work.”

Rural Roots: Mothering Under the Big Sky, by Kelly Rumney

By Birth, Caregiving, Community, Maternal Mental Health, Parenting, pregnancy, Self-compassion

This is a featured article from our 3rd edition of the LIFTS Magazine.  

Rural Roots: Mothering Under the Big Sky, by Kelly Rumney

As Montana residents, we all have some sense of what rural life looks like. In fact, living in wide open spaces can be peaceful and rewarding; it’s one reason many of us choose Montana as home in the first place. But, as a mother of a newborn, it can also be isolating and intimidating.

I live on a beautiful ranch 10 miles outside of Cascade, a small town of around 600 people. As soon as my husband steps out the front door, he’s already at work, tackling jobs that require him to report for duty seven days a week, during most of the year. Living the dream! Except…I am 45 minutes from the nearest medical help or activities for my children. As a new mother, this definitely caused anxiety. Raising my children here is sometimes comforting and sometimes lonely. Often, it’s both. When they were little, I learned to get out and interact with other mothers because, through conversation, we shared similar worries, struggles and wins. Talking with them helped ease my anxiety and depression so much. But, getting up and out of the house and on the (long) road is easier said than done.

When I gave birth to my daughter, I was 22. I had never changed a diaper or interacted with babies other than our calves. Needless to say, I was unsure about motherhood. So, after she was born, the friendly nurses made sure the car seat was good to go and I was released into the wild – sore, exhausted, and terrified. I arrived home, a panicked mess, and tried to act like I knew what I was doing. Fake it ‘til you make it, right? I felt so unprepared. Luckily, my mom stayed for a few days to help, and my mother-in-law lived next door. They both offered advice, but it was mostly conflicting and definitely wasn’t what I’d read in the baby book. Visitors came, and they too would offer heaps of advice.

Meanwhile, no one warned me that I would continue to look and feel like a whale, or that nursing would be so darn hard, or that I would be so sore. Did I mention the baby was 8lbs, 10oz after 17 hours of labor? The cows out in the field make it look a lot easier! Eventually, things quieted down but, as soon as it did, I longed for people to come back and advise me. I was alone all day, every day with only my own panic for company. Is she pooping too much or too little? Eating enough? Crying enough? Too much? What if she stops breathing? Why won’t the baby stop crying; is she fevered? I swear I took her temperature 12 times a day.

Oh, the mom brain! I imagined horrendous things happening to my infant. I once spewed out all the thoughts in my brain to my husband, who seemed so calm in his transition to parenthood, changing diapers like a pro and unfazed by screaming or fussing. He asked how a person could stay sane with the thoughts I was having. Well, I wasn’t! I was struggling with postpartum depression but didn’t realize it until the birth of my son, two years later.

Everything felt so overwhelming. John would go to work, and I would worry about all the possible accidents he might get into. It seemed like I was faking it, but not making it. Even doctor appointments and grocery shopping felt daunting. Since we lived so far from town, we would try to fit in as many errands as we could into one trip. This meant long days spent trying to function in public. Nursing in the car’s not easy, and I constantly worried that people would hear my baby crying and judge me.

Finally, someone told me “Dumber people than you have raised perfectly healthy and happy children.” And, for whatever reason, hearing that made me feel better. In fact, 16 years later, I still remind myself of this. I came to understand that we all have strengths and weaknesses and despite, or maybe because of them, our kids will be okay, as long as we care enough to try. Let me repeat: TRY, not master!

I started to relax and let the baby cry for a few minutes in the crib while I showered. I napped when the baby slept. I went for walks, taking time to just breathe the mountain air and visited my 15-miles-away-neighbor who had a baby the same age and found that we shared a lot of the same worries and self-doubts. I saved my favorite show to watch during night feedings, so it felt like a special treat. And, instead of putting pressure on myself to keep the whole house clean, I just chose one spot (the kitchen sink) and focused on keeping that clean. The rest of the house might be a disaster but, if that sink was shiny and tidy, I felt like I was succeeding in life. These were small things, but they made a big difference.

Then, along came child number two and it seemed like everything I had learned up until then no longer applied. Depression hit hard. This baby did not sleep and, honestly, I can’t share much about how I got through this time because I don’t even really remember. We faced jaundice, ear infections and thrush (which made nursing excruciatingly painful). Labor was more complicated, so recovery was harder and took longer. I had intrusive thoughts that scared me and kept me up at night, but I also had thoughts that seemed so apathetic and disconnected they didn’t even feel like my own. I’d say to myself, “What kind of mother thinks this way?”.

I felt like I was in an exhausted stupor most of the time; just running on fumes in auto-pilot mode. I’d forget things and miss things and was afraid of what that could mean. I no longer felt like a healthy mom, so I finally asked my doctor to help me with the curtain of apathy and exhaustion that had landed between me and my world. The cowboy mentality of “spit on it and rub a little dirt in it” was not going to suffice here. I was isolated, sad, and tired, but none of that was my fault.

My husband was incredibly supportive and involved with the baby, which was great but, in some ways, made me feel worse. Why was this so easy for him? Eventually, I realized I was not a bad mom. Like so many other moms, I was trying to live up to an unrealistic ideal that just doesn’t exist. By taking the time to care for myself and allowing myself some grace, I was doing a much better job of taking care of my baby. I was learning to ask for help and that accepting help didn’t mean I was failing as mom; it actually meant I was rocking it!

As I look back, I realize that every parenting journey comes with unique challenges, and you have to just parent in a way that works for you and your family. Take the advice that helps and leave the stuff that doesn’t. Just because you don’t have a chore chart doesn’t mean your kiddos won’t grow into responsible adults. No two children are exactly the same, so no two parenting styles should be the same either. What worked for my first born had to go out the window for my second born. In balancing a teaching career along with parenting over the past 10 years, I have spent a lot of time with other people’s children and, from what I can tell, the kids that seem to be growing into fully functioning citizens are the ones whose parents consistently try their best, but also allow for chaos, mistakes, and messes. They surround themselves with support so they can be reminded that one bad day does not mean the end of it all. So, give yourself some grace, find support, and just TRY!

Resources and Support:

To learn about statewide programs and resources designed to help support rural families in Montana visit: https://www.frontier.care/beyondtheweather.html

Or, visit https://hmhb-lifts.org/ for local resources using the search terms “counselors” or “support groups”.

 

The Unexpected Blessing, by Crystal Ascheman

By Birth, Down Syndrome, Medical Diagnosis, Parenting, pregnancy, Self-compassion, The Power of Story

This is a featured article from our 3rd edition of the LIFTS Magazine.  

The Unexpected Blessing, by Crystal Ascheman

I remember it as if it happened yesterday, even though it’s been seven years now. My husband and I are sitting in our week 20 ultrasound, excited to find out the gender of our second child together (the third of four children in our blended family). We’re feeling so much excitement and joy and wearing the biggest of smiles. A boy! But then, our celebration is cut short as the ultrasound technician gets quiet while she takes typical growth measurements. As I look up at the screen, I see what has caused her sudden shift in mood. Having attended pre-medicine in college, before starting a family, I know that the measurements are not typical for the gestational age of our precious baby boy. She tries her best to explain the possible abnormalities to my husband and lets us know that she will be sending the image directly to our doctor for urgent review. I don’t add to her explanation as I am still trying to process this unexpected new revelation in real time and am in complete shock. My two previous pregnancies had been typical; with no reason for concern. One week from that first ultrasound, we received a phone call confirming a 96% likelihood of a Trisomy 21 (Down Syndrome) diagnosis. And so began the unknown journey into the blessings of the unexpected. Reflecting upon that overwhelming time in my life, I sometimes wish I could go back in time, sit down next to my 7-year-ago-self, look her in the eye, and reassure her. Here are some of the things I would say:

“I want you to know that it’s okay to feel all of these big emotions after the surprising news you’ve just received. It’s perfectly normal. It’s okay to not have all the answers right now. As parents, we will never have all the answers. Take your time to process and work through the whirlwind engulfing you. As mothers, we are the rocks to our families and we want to look strong and put together but, right now it’s okay to ask for help. (You will need to do this regularly throughout this special journey). You are not inadequate or failing. Just the opposite! You are strong and brave. In being so, you need support right now for your own mental wellness and health, so you can be the best version of yourself and be the mother you want to be. Please don’t suffer alone in silence trying to “hold it all together”. Extend the same grace and compassion to yourself as you afford to everyone else. Be kind to yourself. Little eyes and little hearts are learning from your example of self-care.

As you adjust to this new version of motherhood with a child with a disability, don’t be afraid to ask questions and reach out to the special community of parents and organizations who share your concerns, struggles, and triumphs. They hold invaluable experience on this extraordinary journey. They will truly be the only ones who will understand just how you’re feeling and the battles you will encounter. You are not meant to face these battles alone. You’ll need a collective community full of compassion and understanding. These will be your “people” and your precious son’s “people”. Embrace them with a happy heart. Learn from their experiences because they will help you to find your voice (for your son) and don’t be afraid to use it! You’ll need to speak up often along the way. And always trust your instincts as a mother–you can rely on them to carry you through.

As the weeks turn into months and months into years, you will encounter some hard days. On those days there will be many tears and doubts. Remember, they are but a moment in time and this too shall pass. There will be times when you feel like you’ve given your all and it’s still not enough. But I’m here to tell you that it is. You ARE enough. I’m here to remind you you’re doing a wonderful job, even though it’s a tough one. I want you to know that all the effort and hard work you’re putting in and all of the sacrifices you’re making DO make a difference. You might not be able to see it right away but, the most important difference you will ever make will be realized in the quality of life you’re giving to your children. There is no better reward in life than that. As you find your way through these hard days, you will also have days filled with a level of joy you’ve never experienced before. And, in the middle of all of it, you’ll have the subtle realization that you never would have found all this joy and strength and grace if you weren’t walking along this special path, holding his little hand in yours. While this journey is not one for everyone, it’s the journey you never knew you wanted, and it comes with the best unexpected blessings.”

 

 

Resources and Support:

To learn about statewide programs designed to help support families like Crystal’s, visit https://www.umt.edu/rural-institute/act-early-montana/resources/.  To find local resources, visit https://hmhb-lifts.org/ and search the term “child development”.

Crystal also highly recommends:

Community Children’s Pediatric Specialty Clinic: https://www.communitychildrens.org/services/pediatric-specialists/

Butte’s Special Riders program https://www.buttespecialriders.org/